Title:
Manifestations of the Positive Death Movement in America: Medical Aid In Dying, Voluntarily Stopping Eating & Drinking, and End-Of-Life Doulas
Manifestations of the Positive Death Movement in America: Medical Aid In Dying, Voluntarily Stopping Eating & Drinking, and End-Of-Life Doulas
Author(s)
Incorvaia, Aubrey DeVeny
Advisor(s)
Levine, Aaron D.
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Abstract
Western society is in an era of death awareness, its most recent salience: A Positive Death Movement. This dissertation examines manifestations of the movement, framing them as direct, indirect, and induced effects of public policy. Policies have intended consequences, off-target effects, as well as more distant, rippling impacts on society at-large. The empirical research herein investigates these dimensions of policy’s influence, leveraging an assortment of theoretical lenses, which originate from policy design, social psychology, and sociology. Methods incorporate both qualitative and quantitative approaches, tools, and techniques.
Chapter one presents the history of American death culture and overviews the movement for death positivity and its scholarship. Chapter two shows that implementation of Medical Aid in Dying (MAID) policy reduces self-harm and undetermined intent death rates for those with cancer. Specifically, use of regression analysis to generate a difference-in-differences estimation indicates that implementation of MAID results in a statistically significant 20 percent reduction in self-harm and undetermined intent cancer death rate, even when controlling for individual and macro-level risk factors. Chapter three examines a church’s response to Voluntarily Stopping Eating and Drinking, revealing that a church community may be a source of legitimacy and support for this end-of-life choice to hasten death in the face of terminal illness. A case study of one southern Anabaptist congregation employs a focus group and one-on-one interviews during which study participants reported their affirmation of VSED, but professed uncertain and conditional involvement in respite care provision post VSED initiation. Responses varied widely to faith-based justifications for the practice. Chapter four uses analytic autoethnography to elucidate a new role arising within the system of deathcare, End-of-Life Doulas (EOLDs). Two EOLD training programs framed their education in hallmark terms of the movement and are seeking to professionalize the role through the use of functionalist / trait – oriented documents, an approach aligned with a ‘sociology of professions’ framework. Chapter five concludes the dissertation by summarizing results and considering opportunities for future research, while also acknowledging the necessity of addressing ongoing impacts of the coronavirus pandemic and the racial reckoning currently underway in the United States.
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Date Issued
2022-04-06
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Text
Resource Subtype
Dissertation