Design guidance towards enhanced ophthalmological and rehabilitation communication with patients
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Kim, Dahee Sophie
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Abstract
Vision rehabilitation is essential for helping Blind or Low Vision (BLV) individuals regain independence and navigate daily life. However, current ophthalmological care often relies on visually oriented, clinician-centered communication methods, creating significant barriers for BLV patients to access and understand health information. Accessible communication is critical for patient-centered care, yet little research has explored ophthalmologists’ expectations (predictions, desires, tolerances, and perceived rights), training, and familiarity regarding inclusive communication practices. This study investigates these gaps through a mixed-methods approach, integrating surveys, community engagement, and design probe deployment to examine how ophthalmologists perceive and implement novel communication strategies. Findings reveal that ophthalmologists often lack formal training and rely on family-mediated communication and simplified strategies, which limit BLV patients’ autonomy and effective information delivery. Although clinicians try to adapt to patients’ needs, unfamiliarity with non-visual methods and time constraints hinder consistent communication. This study proposes design criteria for curricula, training materials, and technology-enhanced products that prioritize accessibility, privacy, multilingual support, and durability. Ultimately, this thesis contributes a framework for understanding “modalities of care” that move beyond information delivery to address the complex dynamics of equitable, patient-centered doctor-patient relationships.
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2025-01-10
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